I am sorry it has been so long since any info. Abbie is doing great. I just wanted to say hi and let you know that I am planning on posting at least once a month this year and this is January's.
We have been given the OK to stay away from Cardiology for a whole year! As nervouse as this first made me I am totaly cool with one less Dr. apt. so often. He is so pleased with Abbie's heart function.
Abbie started school last March. I was pretty happy with things except equipment. Her PT was wonderful and tryed to get something that would be small enough for Abbie. This summer they finaly agreed to let the PT order a chair just for Abbie! It is a good chair for her but I feel like I am taking Abbie to school to be babysat. I love her teacher and the PT but she was progressing in all areas so much better when she was getting outside medicaly baised therapies. I am sure I will get alot of negative thoughts on this but, Lee and I have decided to pull her from preschool and put her back in the other therapies. I will still take her to the elementary school to get educationaly baised therapies but, we feel she needs more and there is not enough time to add babysitting (preschool) in too. I will post again soon and let you know how things are moving with this.
Look back for pictures soon!