Wednesday, February 25, 2009

Please Pray For Peter!

This is Peter Ellsworth. He is a friends baby. He is 2 months old and needs your prayer. He had heart surgery yesterday Feb. 24th to conect his pulmonary artery to his lung. He came through surgery fine but last night at around 3:00 am his heart stopped. They had to resuscitate him and could not get his heart to work on it's own. They put him on the heart/lung machine. The Dr. is not giving any outcome. He could come through, come through with brain damage, or not make it through. The chance is the same for all situations right now. He has a caringbridge site if you would like to stay updated with what is going on with him. I ask for your prayers for this family and little Peter.

Sunday, February 15, 2009

Orthopedic Appointment and New DYNA SPLINTS

Abbie does not mind the splints, as you can tell by the big smile!

She looks like she is thinking pretty hard. I'm not sure if she is wondering about the splints or if she is trying to figure out how to not fall over!
Abbie had an appointment with ortho at the end of January. He is pleased with her bones and joints. Nothing new has changed. There are 2 things that have always been a concern and are on going.
The first is her thumb joints. She does not extend her thumbs out completely and this could cause contractures in the joint. We ordered a pair of braces for her hand long ago and she has worn them quit a bit. Now, they want them on her 2 hrs off 30 min all day long. There are so many other things to work on in OT that the thumbs are not priority all of the time. This will keep them stretched almost constantly. She does not mind them but the velcro closures scratch her face so we put socks over them. I will try to get a picture so you can see how they look.
The second thing is the back of Abbie's knees have never stretched out straight. We have worked on this from the begining. They started out at about 30 % and we have gotten them to around 10-15%. We feel as if they now need a constant stretch to get them the rest of the way stretched. Ortho ordered the DYNA SPLINT. We just got them on Thursday. I can not believe how big they are! Abbie does not seem to mind them. She started out with 1 hr a day and will build up to 5 hrs a day. We are hoping this does the trick!
We have also stared to see a behavioral Anylist. I will tell you all about this new appointment when we get all of the plann of action sorted out. I am very excited for this new adventure. I think it is going to be a great help for Abbie and me!
We have 2 other new appointments to add to our list of Dr.'s. This month we will see a neurologist and an endocrinologist for the first time. I will keep you posted on how these appointments go.

Saturday, February 14, 2009

2009 MRI Results Are In


Abbie has 2 small canals in her spine that we recheck every year for any changes. These have been there since birth. They are explained as little open areas next to the spinal cord with spinal fluid in them. If they grow and continue to fill with fluid they would begin to compress on her spine and nerves and cause lower extemity paralysis. Last year there was no change. This year we did the MRI on Jan. 2. Abbie did very well without being able to eat. It took about 1 1/2 hrs once they began. They took me back with her to get her to sleep before they started the IV. She went to sleep with a fight to the very end. Then I had to leave for the MRI itself. They told me it would be about 45 min. I started to get a little nervous when it took so much longer. Finaly, they came to get us to see her in recovery. She did great under the anesthesia. The reason it took so long was Abbie is a very hard stick. It took 7 times of not getting a vein before they called in a 2nd Anesthsiologist in to help with a jugular vein IV. This was kind scarry to me but they said the bleeding stopped fairly quick. Yuck!!! Any way, the Dr. called me with the results saying one of the canals looks to be getting smaller and the other is still the same. Good news! It looks as if this is going to resolve itself with no surgery! We will check again next year.