Abbie has been doing well. She will be three on Monday March 16 and I will post a big update then. For now a few things.The neurologist is pleased with her. We will be doing another EEG soon because it has been a year since the last one but he does not think it will show anything different. This is great! He will be another yearly Doctor.
The Endocrinologist was great. I was worried they were going to want to put her on growth hormone right away. He actualy feels like it is not a hormone issue. He said if he lined up 1,000 girls Abbie's age she "might" have 1 or 2 shorter then her. If we lined up 1,000 girls Abbie's age no one would weigh less then her. And if we lined up 1,000 girls Abbie's length no one would weigh less then her. Because her weight is so much more greatly affected then her length he does not feel like it will be an Endocrin thing. He wants her to go to the Gastroenterologist. This will probably be a few months away because of all of the paper work and scheduling. We did do blood work. This is always a fight with Abbie. She does not like to give us her blood. We had to stick her three times and they were not sure if they got enough. They called this week to let me know it was not enough and we have to go get it done again. What joy =( I'll let you know what comes of it.
We have also done all of the testing for school. The IEP meeting is scheduled for her birthday, Monday, March 16. I am alittle worried because the school she will have to go to does not have equipment small enough for her and she will need to start the next day to keep up with therapy. They will not even dicuss equipment until the meeting so I may not be sending her for anything but the 30 min of therapy for each therapist until the equipment is available. Pray this all works out please.
Look for the new update next week after Abbie is the BIG 3!!!!!
4 comments:
In case I forget next week, Happy Birthday Abbie! You look great in the pictures Abbie!
Gavin (Zoe's daddy)
HAPPY 3RD BIRTHDAY ABBIE!!!!!! Thinking of you and hope you all had a wonderful day celebrating!
hi, my name is kim stipes and my daughter, sophie just turned 7 in january. she was diagnosed with
1p36 3 weeks or so ago. i am in amazement as to how much your little one looks like sophie. i come to your blogspot everyday just to look at her. brings back memories of my little girl. you have lots to look forward to as far as milestone accomplished. dont worry. i know that it is hard to hear that, but she will. the drs. told us that sophie would be no more than a burden and a vegetable like child. how encouraging, right? needless to say, we switched drs. are you going to the conference in july in indianapolis. we are. we live 45 min. away, so it is very convenient for us. happy birthday to abbie from sophie and our family. we have a blogspot also, sophieajouneyinprogress.blogspot.com if you would like to email or connect with us. your daughter is truly a beautiful little gir. aside from the fact that she looks so much like our sophie. :) i hope all is well with you and yours.
respectfully, kim stipes
Kim - Hi, we still go to PT on Thrsdays at 11 am. We have also added OT on wed. I want to talk to you about Abbie and school. Wow! Congratulations on the new pregnancy. Girl you must have tons of more patience than me. Maybe we can get together sometime this summer. I also wnat to tlak to you about your foundation details.Kim and Caroline
BTW - Abbie looks like such a big girl!!!
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