ABBIE PLAYING ON THE FLOOR. SHE LIKES TO PLAY ON THE FLOOR AND ROLL FROM SIDE TO SIDE. SHE HAS EVEN FIGURED OUT HOW TO GET OFF OF THE BLANKET AND IN ALL DIFFERENT DIRECTIONS!
Abbie has seen some Dr. this past week. All good reports. Praise God! We will be adding a new Dr. to the agenda soon.
We went to the Pediatrition on Monday. It was a 6 month catch up with Abbie check! We have been "talking" on line at our support group about something called Tethered Cord. This deals with the spinal cord being attached to tissue in the back at the tail bone. I was a little worried because Abbie does have a few of the symptoms. Abbie had an MRI done last year that I was hopping would tell us if she did have a tethered cord that was looked over so this is one of the reasons we went. The Dr. looked at the results and it actualy says, "no tethered cord". This is great. It is one more thing we have rulled out and don't have to deal with! We also wanted to get things stared to see Endocrinology (sp). We just want to rule out any underlying issue that may be causing Abbie to not grow very quickly. None of her Dr.'s think there is but we want to make sure. So, this will be our added Dr. Fun, Fun......... I don't have an apt. yet because they want to review her records to make sure they put her with the best Dr. for her. I will update on it when I know more. We are also in the process of getting a disabled parking permit for Abbie. This will be so nice to not have to lug her and the others too far to get in a store! It will also come in handy when her new wheel chair arives!!! More on that in a bit. Abbie was 14 lbs. 13 1/2 ozs. She was 32 inches long. My word can we get any longer for our weight?! She is still growing ever so slowly!
Abbie saw the ENT on Tuesday. He is pleased. We will always have issues with her ears getting clogged because of the form in her canal but the oil drops are helping. There was no fluid and the 2nd set of tubes is still in place. He is great and thinks about Abbie's whole person. He may come in with some great help once Abbie starts in the school system and even before. We are going to try to get insurance to pay for more and I may have some great help wth this. I'm not sure I can post toom uch on it. Just be in prayer for the insurance sittuation.
Abbie will be getting a new wheel chair!!! The loner that was given to us is not working out like we had hoped. Abbie is to rotten and has figured out how to get out. She scoots her butt and arches her back and gets over the edge hanging by the seat belt. Not too safe. She is a mess. We decided She needed a costome one specificaly for her. We will be thinking of it all to keep her in place (I hope). When I get the link to it I will post it so you can check it out. It will be at least 3 months before we have it but the process has started anyway. I am very excited.
Therapy is going well. She is gaining strength and more control each week. We are making her a cool chair out of foam. I will post pictures of it hopefully next week. She will sit in it with her legs straight out infront of her and have support behind her for her trunck. I think it is going to be very helpful in trunk strengthening. She has also stared to roll off of her tummy onto her back. Sometimes she needs a little help tucking her arms under her but she is doing great with it.
Pressure and a Whole Lot of Family Time!
5 months ago